Letting a child die for a voluntary ideal

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Letting a child die for a voluntary ideal

By: Sally Satel
Posted on June 19, 2013 USA Today Topics:

 

Sally Satel, MD, is a resident scholar at The American Enterprise Institute and a practicing psychiatrist and lecturer at Yale's School of Medicine.  I find her research and writing consistently well crafted and insightful.  Sally has lectured in FREE's programs for federal judges and law professors and received excellent reviews.  Further, she is good company.

I've known Sally for years but have no idea if she studied economics.  Never thought to ask-- her work clearly demonstrated the economic way of thinking.  Here is the key: incentives matter and institutes generate information and incentives to act upon or ignore that information.  

Organ transplants, especially lungs, are receiving a great deal of public attention.  As organ transplant technology improves, the questions of organ supply and allocation will become more contentious.  Sally's analysis can improve the debate.

One of Sally's concerns involves medical ethics.  Sally is in an unusual position to comment for she is the beneficiary of a transplanted kidney, an organ relatively easy to transplant but always in short supply.   Here is the key to Dr. Satel's analysis:

The answer (to organ shortages), of course, is to increase the organ supply. But with annual voluntary donations falling far behind demand, we need to give people an incentive to donate. Sarah's ordeal should force a re-examination of the 1984 National Organ Transplant Act (NOTA), the law that makes it illegal for anyone to give or acquire an organ for material gain.

My driver license indicates that I am a potential donor.  What small regulatory adjustment might make this the default? What if, when you go to renew your Montana license, the smiling agent tells you the renewal fee of $40.50 will be waived if you become an organ donor?  Not everyone would agree but this marginal change would surely add to the supply of an increasingly scarce resource.  

I find the economic way of thinking especially helpful when considering such contentious and emotional issues.  And one need not study formal economics to gain the analytic leverage it provides.  A few principles go a very long way.  “Incentives matter” is one.

-John Baden, PhD

 

Letting a child die for a voluntary ideal

Compensate organ donors so patients like Sarah Murnaghan can live.

STORY HIGHLIGHTS

  • Judge orders 10 year old to move up on organ transplant list.
  • Annual voluntary donations are at a standstill.
  • Perhaps an individual could agree to donate his organs at death in exchange for a burial benefit.

Ten year-old Sarah Murnaghan suffers from cystic fibrosis, a crippling respiratory ailment. If she does not get a new set of lungs within a few weeks, she will likely die. Sadly, Sarah's doctors at the Children's Hospital of Pennsylvania have a very small chance of finding a suitable donor.

Rules set forth by the United Network for Organ Sharing (UNOS), the non-profit that manages the national organ waiting list, require that patients under 12 years of age be offered lungs from a deceased adolescent. Presumably, lungs from an adult, which are in greater supply, would be too large for a child-sized body.

For several weeks, Sarah's frantic parents, Janet and Francis Murnaghan, have made public pleas to get her equal consideration with adults in need of lung transplants.

On Tuesday, lawmakers got involved, urging Health and Human Services Secretary Kathleen Sebelius – whose agency contracts with UNOS -- to intervene. "I'm begging you," Rep. Lou Barletta implored Sebelius, "she has three to five weeks to live." Sebelius declined.

On Wednesday, District Court Judge Michael Baylson of Philadelphia overruled the secretary and blocked her from enforcing the age restrictions for 10 days. This would allow Sarah to be near the front of the queue for adult lungs (which her surgeon would reduce to size for her).

And this brings us to the most wrenching question of all: what about the people who will die to save Sarah? Think about it: If adult lungs become available within the next ten days – the extent of Judge Baylson's suspension – and Sarah's doctors surgically reduce them so that they fit, will another person, say young woman whose 21 year-old life is also hanging by a thread, now die instead?

That's an agonizing question to pose. Yet it's precisely the situation that our current transplant system, based on voluntary donation alone, forces everyone -- patients, families, their doctors, politicians, and the Secretary of HHS – to confront.

The answer, of course, is to increase the organ supply. But with annual voluntary donations falling far behind demand, we need to give people an incentive to donate. Sarah's ordeal should force a re-examination of the 1984 National Organ Transplant Act (NOTA), the law that makes it illegal for anyone to give or acquire an organ for material gain.

A revision of NOTA would allow experimentation with incentives to move forward. For organs such as lungs and hearts, the donor must be deceased. Perhaps an individual could agree to donate his organs at death in exchange for a burial benefit or a contribution to his or her estate when the time came. A third party, such as the government or a charity, could underwrite the cost of the benefit.

Would such incentives work? There is good reason to be optimistic, but we need research to be sure. One thing that is inarguable is that our transplant system is an unqualified failure. Over 118,000 patients now wait for kidneys, livers, hearts and lungs. Eighteen die every day because they could not survive the wait.

The organ shortage drove Sarah's parents to pleading for her life. It has pushed politicians to pressure a cabinet secretary to decide who lives and who dies.

Compensating donors could spare us the heartbreak of rationing. Saving one person should not mean death for another.

Sally Satel is a resident scholar at the American Enterprise Institute and editor of When Altruism Isn't Enough: The Case for Compensating Kidney Donors.

 

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